Patient stories – Cancer Care and Haematology Fund https://www.cchf.org.uk Cancer Care and Haematology Fund Thu, 07 Jun 2018 13:18:40 +0000 en-US hourly 1 https://wordpress.org/?v=4.9.6 CCHU hosts Support Groups https://www.cchf.org.uk/2017/05/cchu-hosts-support-groups/ Fri, 26 May 2017 13:11:20 +0000 https://www.cchf.org.uk/?p=602 The CCHU was designed with space to give education, information and support a priority. The activity room is well booked with Creative Arts groups, Relaxation sessions, Citizens advice and Support…

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The CCHU was designed with space to give education, information and support a priority. The activity room is well booked with Creative Arts groups, Relaxation sessions, Citizens advice and Support groups for many of the cancers treated in the CCHU;

 

Lavender Girls

Support group for patients with a gynaecological cancer.

This group meets once a month on a Tuesday from 10.00am – 12 noon.

For more information please telephone the Gynae Oncology CNS on: 01296 316863 (answer phone available)

 

Sunflower Club

Support group for patients with lung cancer or mesothelioma and their carers.

This group meets every fortnight from 10.00am – 12 noon on alternate Tuesdays. The club is open to patients and their main carer or family member.

For more information about this group please speak to the Lung Cancer Nurse Specialist on 01296 315649

 

Myeloma Support Group

Support for patients with myeloma and their relatives/ carers

This group meets every month on a Wednesday 3.00 – 5.00pm.

For contact details please phone 01296 316954

 

Lymphoma Association Support Group

Support group for patients with Hodgkin or non-Hodgkin lymphoma.

Meetings are held on the 3rd Wednesday of alternate months

Family members and friends welcome to attend.

For more information please contact: 01525 221288 or 01296 614062

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It’sssssss Christmasss!!! Getting creative during the festive period! https://www.cchf.org.uk/2016/12/itsssssss-christmasss-getting-creative-festive-period/ Thu, 22 Dec 2016 15:05:31 +0000 https://www.cchf.org.uk/?p=558 Nobody wants to be in hospital around the Christmas period. This is a season to be with friends, family and loved ones but sometimes it cannot be avoided however hospitals…

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Nobody wants to be in hospital around the Christmas period. This is a season to be with friends, family and loved ones but sometimes it cannot be avoided however hospitals and their staff up and down the country do all they can to ensure those most in need feel a part of a wider family and are still able to enjoy the festive period!

Here are some of our favourite creative exploits from hospitals around the country! Merry Christmas!

 

Babies Born In The Festive Period Are Wrapped Up In Christmas Stockings

This Hospital Knows How To Be Festive

You Know You Work In A Hospital When The Christmas Decorations Look Like This

Hospital Decor

Haematology Christmas Tree

Condom Christmas Tree! Don’t Forget To Use One….

 

Wreath Made Of Pee Jars

Hospital Christmas

Christmas Skeleton Named Mal Nutrition

Which one is your favourite? Lets us know!

If you would like to find out how you can get involved in fundraising events for CCHF you can contact us here: http://bit.ly/2dtfpFJ Or even donate to any of our create causes here: http://bit.ly/2dabwnc

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Another week, another cheque for CCHFund! https://www.cchf.org.uk/2016/12/another-week-another-cheque-cchfund/ Fri, 16 Dec 2016 11:15:11 +0000 https://www.cchf.org.uk/?p=552 It wouldn’t be a week at CCHFund HQ without another unbelievably generous donation from a local business! This week it came from the Crown Plaza Hotel who presented  a cheque…

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It wouldn’t be a week at CCHFund HQ without another unbelievably generous donation from a local business! This week it came from the Crown Plaza Hotel who presented  a cheque to the CCHU of £1000!

This is the third time they have been so generous. They started fundraising last year when a very popular member of staff told them about our work and they have continued since with a series of quiz nights, cake sales, tombolas and other fun activities.  They are a warm and generous  crowd and we are very grateful for their ongoing support.

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In My Own Words: Chemotherapy Nurse specialising in IV therapy & IV devices https://www.cchf.org.uk/2016/12/words-chemotherapy-nurse-specialising-iv-therapy-iv-devices/ Tue, 13 Dec 2016 10:59:18 +0000 https://www.cchf.org.uk/?p=545 This is the latest post in the ‘In My Own Words’ series CCHFund is running about the staff, trustee’s and all involved at the CCHUnit. This week, Sarah Drewett, a…

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This is the latest post in the ‘In My Own Words’ series CCHFund is running about the staff, trustee’s and all involved at the CCHUnit. This week, Sarah Drewett, a Chemotherapy Nurse specialising in IV therapy & IV devices, speaks about her role at CCHUnit and what inspired her to start her fantastic work.

 

 

I have been in the post of chemotherapy nurse specialising in intravenous (IV) therapy and IV devices at the Cancer Care and Haematology Unit, Stoke Mandeville Hospital for over 10 years now. My role is to assess, insert, give advice and teaching to both patients and staff regarding intravenous access devices.

My IV specialist role includes inserting peripherally inserted central catheters (PICC’s) in the chemotherapy day unit using an ultrasound machine, removing the tunnelled central venous central catheters (Hickmans®) and giving the advice and support to patients and staff regarding all aspects of IV therapy and devices.

Prior to my appointment, PICC’s were inserted in the x-ray department of the main hospital by a consultant radiologist and team and treatments were often delayed until a device could be fitted.

Now that PICC’s are inserted on the unit the patients have no delay to their treatment, they have the benefit of a nurse inserting their device who understands their therapy and device needs as well as being able to be seen promptly by a specialist if a problem arises which prevents unnecessary line removal. Often these patients have met me previously as part of their treatment so I am a familiar, reassuring face when they need a device inserted.

Removing tunnelled central catheters is a surgical procedure which was often delayed prior to my appointment but now can be removed as part of my role on the unit.

When I am not inserting or removing central lines or giving advice I am caring for the patients receiving chemotherapy. This part of my role involves patient assessment, insertion of peripheral cannulae, administration of chemotherapy and advising patients on their care needs, side effects and home medicines.

This requires extra training in venepuncture, cannulation, IV drug administration and chemotherapy administration which all the chemotherapy nurses bring to their role, as well as myself.

I really enjoy my role and our patients in the chemotherapy day unit are often surprised by the happy, café-like atmosphere whilst still being treated safely and professionally.

I am very grateful to the Trustees of the CCHFund for their continued support of my role. I know this improves patient safety, timeliness of treatment and reduces patient anxiety at a difficult time of their lives.

 

CCHFund: nurses and infrastructure

As well as paying for equipment and infrastructure, CCHFund believes that funding extra nursing posts is a really valuable way of enhancing the quality of care we can give in the unit.

Sarah Drewett is very much close to our hearts as the IV line nurse who for several years has been employed to put in and take out the specialised intravenous catheters/drips, needed by some patients to get their chemotherapy given safely and comfortably.  Sarah was originally trained to do this, as a nurse specialist, in a major teaching hospital, but when she moved to Aylesbury and started her family, we were quick to ‘head hunt’ her and welcome her to the CCHUnit!

As well as putting the lines in herself, she has trained others to do the same, and supports staff and patients in managing them, so there is always someone available, should a concern arise, and there are no delays in getting lines in to start treatment.

Knowing there is always an experienced and approachable source of expertise close at hand is very comforting for patients.

Thanks to all those who have supported us in providing this top class care and please keep up the good work. If you would like to get involved with any of the work we do at CCHFund then contact us at cchfsocial@gmail.com or go to our Facebook or Instagram pages to find out more.

 

 

 

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Becky’s Bears – buy a Teddy Bear to support the wig fund! https://www.cchf.org.uk/2014/02/beckys-bears-buy-teddy-bear-support-wig-fund/ https://www.cchf.org.uk/2014/02/beckys-bears-buy-teddy-bear-support-wig-fund/#comments Thu, 27 Feb 2014 08:48:28 +0000 http://cchf.dev/?p=212 For ladies who lose their hair as a result of chemotherapy, CCHU has a free wig service. Becky Cooper was one patient who benefited from this service. This is her story in her own words.

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When I was told I would need to have chemotherapy, the nurses made it very clear that I would lose my hair. My first thought was that I had always wanted to know what I would look like with short hair. Then the reality dawned – this would be the outward sign ‘I have cancer’ and it would be there for all to see, and pity the poor girl and the baby with her.

“This persona has never been me so I decided I needed to buy hats – easy, well until you start trying them on and realise they look great when you have hair under them but when you haven’t, they never quite cover what you need them to!

“I spoke to a nurse at the Cancer Care and Haematology Unit at Stoke Mandeville Hospital who suggested I try a wig. The unit is one of the very few who offer a free wig to each of its patients. For me, having a wig meant I could carry on with some day to day tasks without the constant questions (and a cold head!).

“The funds come directly from fundraising and with each wig costing in the region of £120, more funds are constantly needed. All money from the sale of Becky’s Bears (at CCHU reception) goes towards providing wigs for people having treatment for cancer. Unfortunately, you never know when you might need it.

“We made the experience a positive one and I went to the fitting with a friend. In the end, I did choose one like my hair style at the time, but I think if it wasn’t for my wig I may have become a slight recluse because, even in winter, there are only so many places you can wear a woolly hat to!

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